Category: APPG on PKU

  • Westminster Hall debate on PKU

    On Tuesday 26th June, Liz led a debate in Westminster Hall on improving access to innovative treatments for PKU patients. We had a great turnout at the debate from both MPs and visitors. I was particularly pleased to welcome families and children affected by PKU to Westminster to hear today’s debate – especially my constituent Archie. Liz…

  • MPs sign Early Day Motion (EDM) to improve access to treatment for Phenylketonuria (PKU) patients

    MPs today signed an EDM supporting the need for improved access to treatment, support and innovative new medicines for PKU patients. The six MPs, noted below, hope many more MPs will now follow. The six MPs, including  the MP for Blaydon, Liz Twist, also hope the EDM will raise awareness of PKU, a rare metabolic disease…