Liz writes February 2020

In January I chaired a breakfast roundtable organised by the Industry and Parliament Trust, bringing together industry representatives, third-sector organisations and parliamentarians to discuss the issue of suicide in the construction industry. The meeting had a profound impact on me.

As Chair of the All-Party Group on suicide and self-harm prevention, I am familiar with the number of lives lost to suicide and the statistics that show that middle-aged men are particularly at risk. However, even I was shocked to hear that two construction workers each day die by suicide and that twice as many die by suicide as those who die falling from heights.

A huge amount of work has been done on reducing the physical risks in the construction industry. I am glad that there are now moves by some employers and charities such as Mates in Mind to put the same focus on tackling mental health issues and preventing suicide in the construction workforce.

I fed those shocking shocking statistics into the Queen’s Speech debate on the area of Health and Social Care. Last year, the number of deaths by suicide in the UK rose significantly—an increase of more than 600 on the previous year. There were 6,507 deaths by suicide in 2018. The statistics show that middle-aged men remain the highest risk group, though rates among young people, too, are rising.

Suicide is a public health issue. It is startling to know, from work done by the University of Manchester in 2018, that two thirds of people who take their own lives are not in touch with mental health services in the year before they die. We need to find a way of reaching out to these people.

We know from work by the Samaritans and others, that low incomes, job insecurity, unemployment, housing problems and benefit sanctions are some of the key factors that lead to the desperation which many people feel.

Most councils have developed suicide prevention plans, but the Government must do more to make sure that those that do not, develop them as a matter of urgency, and that those that do, put them into real action. I have to say that cuts to public health funding by the Government is making life much harder for those local authorities that are translating their plans into actions.

Some £57 million has been made available for suicide prevention, but local NHS services need to make sure that the gaps in services, which too many people can fall through, are filled in. For example, there must be a way for people who are considered “too suicidal” for talking therapies to be able to access secondary mental healthcare swiftly, and more non-clinical services need to be available, too.

We need to keep campaigning for improved mental health provision in our region, but many of us can do more to prioritise our own self-care, to make sure we are looking out for ourselves, our friends and family.

Blue Monday is known to many of us as the day in January which has been identified as one of the toughest days of the year for a lot of people. This year it landed on Monday 20 January. With many of us still strapped for cash after Christmas, the cold weather and dark mornings and evenings can impact on our well-being.

The Samaritans “Brew Monday” campaign is a positive response that encourages people to make time to get together with friends and family, pop the kettle on and have a chat over a cup of tea. It makes the simple point that we need to avoid isolation and keep talking about how we are getting on, seek support when we need It and offer it to others in their time of need.

So, I was pleased to join volunteers once again at Newcastle Central Station, to raise awareness and offer a listening ear to commuters on their way to work. And this week I hosted Parliament’s own “Brew Monday” to highlight the issues with MPs from across the House. I’m glad to say it was very well attended – let’s hope it helps get the message out.

Liz writes October 2019

“People before privilege” was the theme of last week’s Labour Party Conference in Brighton.
We announced bold new policies including putting the final say on Brexit back to the people, rolling out a new national living wage that extends to young people aged 16 plus, and a radical green new deal for Britain, so we can lead the way in tackling climate change.
Our annual conference is a bit like a big family get together. We come together once a year to celebrate everything we share in common, we argue passionately for our deeply held beliefs and rows do, at times, break out.
Of all the parties, Labour’s conference has always been the most dramatic, but that drama flows from democratic debate as we thrash out ideas of how we can take our country forward in the years ahead. We are, after all, a “broach church”, with over half a million members from all walks of life.
One of the areas our whole family agrees on is the urgent need for a social care service fit for 2019 and beyond. The Government’s complete failure to publish their white paper on social care, promised over the last three years, demonstrates that they are not up to the job of delivery.
While the Tories are set to cut taxes for the wealthiest in society, Labour announced last week that our next government will create a National Care Service, with record investment in free personal care to support older people to live independently with dignity and security. We will ensure more people can access help with daily tasks such as getting in and out of bed, bathing and washing, and preparing meals in their own homes and residential care.
With nearly £8 billion taken from council budgets for social care since 2010, we now have one million people not getting the care they need. 87 people die each day waiting for care and more than five million unpaid carers are looking after family and friends.
So, we’ll address the funding gap in social care and support local authorities to directly provide, rather than outsource adult social care. That means more accountability and a better use of public money, rather than the private sector model that has failed to provide decent care for many of our vulnerable people in favour of profits for shareholders.
Currently, only people with low levels of savings receive publicly-funded personal care. People with dementia face the highest costs for care. Labour’s plans will more than double the number of people receiving state-funded care and reduce the number of people facing catastrophic costs for their care.
Free personal care will ensure people with dementia receive the same care as those with other conditions, reduce the burden on unpaid carers and benefit the NHS by reducing delayed transfers of care from hospital and admissions to care homes and hospitals.
As part of the National Care Service, We will raise standards of care by ending the use of zero-hour contracts, ensuring that carers are paid a real living wage, including for travel time; end 15-minute care visits; and improve access to training and development for care staff.
We will put an end to the culture of overworked, underpaid care workers who are only allowed ten minute visits to those they care for. The current system simply isn’t fit for purpose, and is sucking money out of the system and into offshore tax havens. It simply can’t go on.
Nothing is more important than dignity in retirement for those who have built our country and given younger generations the world we live in today. Tackling the crisis in social care is a priority for Labour.
Our plans for social care will address the immediate crisis in care, double the number of people receiving publicly-funded care, and stop people with dementia being treated unfairly by the care system. Our National Care Service will be universally available for all who need it.

Liz visits Maternity Unit at QE Hospital

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This morning I visited the Maternity Unit at Queen Elizabeth Hospital in Gateshead (QE), along with Gill Walton, Chief Executive of the Royal College of Midwives (RCM).

I was very keen to see first-hand the excellent work done by Midwives at the QE. A recent CQC report rated the Maternity Services at the QE as “Outstanding”; with the Hospital being rated as “Good” overall.

I’ve been delighted today to have seen the tremendous work done by staff at the QE Maternity Unit. It’s made me very proud.

It is important that we now maintain this level of outstanding service. At a time when so many Maternity Units across the country are struggling, it’s essential that we don’t let that happen at the QE. All Maternity Units deserve the high level of service that we have here.

APPG for Phenylketonuria (PKU)

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Yesterday Liz was delighted to Chair an All-Party Parliamentary Group (APPG) aiming to raise the profile of the rare disease, Phenylketonuria (PKU).
PKU is a rare genetic metabolic disorder affecting around 1:10,000 people in the UK. People with PKU cannot metabolise phenylalanine, an amino acid found within protein foods. This disease can cause irreversible brain damage or impaired cognitive or neurological function if not correctly treated.
Currently, the only treatment funded in the UK is an extremely restricted dietary therapy in which almost all natural protein is removed from the diet. The majority of PKU patients in other European nations have access to the drug BH4 (Kuvan), which can increase a PKU person’s protein tolerance. The NHS does not currently commission Kuvan treatment.
We am hopeful the APPG will raise awareness of PKU and consider the need for improvements to access to treatment. The picture shows Liz with members of the NSPKU (National Society for Phenylketonuria).

Liz Twist’s New Year Message

Column – January 2018

So here we are in another New Year – 2018 already. I hope you had a good break over Christmas and the New Year. On Monday I’ll be returning to Westminster, but this week is a good chance for me to catch up on local issues and get a feel for what’s important to my constituents here locally as well as nationally, and to have a look forward to the coming year.

Labour has a positive message for the coming year. Jeremy’s new year message set out again our vision of a Britain offering opportunities for all, one where a Labour Government would implement the policies which so many people here in the north east welcomed in our election manifesto and which work for the many, not the few. Key to that message will be our concern for the NHS. Coming in the week that NHS chiefs announced that most pre-planned operations will be put on hold until the end of January, I think all of us would welcome the increased investment which Labour has promised for the NHS and Labour’s commitment to keeping the NHS public.

We have some excellent NHS services here in the north east and I know that, as we look forward to celebrating the 70th birthday of the NHS this year, my constituents are determined that our hospitals and other NHS services are delivered for the public good and not for private profit. We’ll be making sure that the Tories aren’t allowed to slip through massive changes to the NHS while Brexit dominates the agenda.

Tuesday of this week saw Shadow Rail Minister Rachel Maskell in Newcastle highlighting the Government’s shockingly poor rail policies for the north, services which sell our region short but which would unbelievably let Virgin East Coast off the hook of paying the payments they promised for running the franchise under the cloak of a reorganisation of rail services. All this at the same time we see passengers paying the price through a 3.4% hike in rail fares. We have experience up here of how a rail service can run successfully and make a profit under public ownership – which is exactly what East Coast mainline did! No wonder there’s a lot of support from my constituents for our policy of having directly run, modern and efficient train services.

So back in Westminster we’ll be challenging this shambolic Tory Government on their plans for the NHS, transport, funding for local government, and fire and rescue services; we know these and other issues are what make a difference to folk here in the North East.

Last month I had the chance to meet representatives of organ donor groups and NHS Blood and Transport to hear about how many more lives could be saved if more of us became organ donors. I was shocked to hear how many people are waiting for organ donation, many of them dying needlessly for lack of donors. Just before the Christmas break and following all-party support, the Government launched a consultation exercise on increasing the number of donors and asking whether we should look at an “opt out” donation system as they have in Wales.

Whatever your views on donation, please take part in the consultation and most of all, have the discussion about your own wishes with your family and friends. My friend Jon was fortunate to find a donor and have a successful heart transplant at our own Freeman Heart and Lung transplant unit and it has made an incredible difference to his life.

You can find the consultation online at https://engage.dh.gov.uk/organdonation.

Liz’s contribution to the “Autism Community: Mental Health and Suicide” debate

You can watch and read Liz’s contribution to the Autism Community: Mental Health and Suicide debate below:

“First, I thank the hon. Member for East Kilbride, Strathaven and Lesmahagow (Dr Cameron)—sorry for my pronunciation—for her thoughtful and comprehensive speech, and for setting out the difficulties that people with autism face. I am tempted to say, “What she said,” but I do not think that does justice to the situation.

I just want to touch on a few points. Earlier this year I met Autistica, a charity that does research into autism. If other hon. Members have not seen its report “Personal tragedies, public crisis”, which looks into why people with autistic spectrum disorders die early—up to 16 years early, as the hon. Lady said—I would encourage them to do so. It makes shocking reading. The key points include the point that autism in itself is not a mental health problem, but that eight out of ten autistic people will face mental health difficulties, such as anxiety and depression. Four out of 10 children with autism have two or more mental health problems. The research also shows that suicide is a leading cause of death among people with autism. Autistic adults without a learning disability are nine times more likely than others to die by suicide, and autistic adults with a learning disability are twice as likely to be die by suicide. Those are shocking figures. Suicide is preventable, and we need to do much more to reduce those figures.

We also need to recognise some of the specific problems people face. As other Members have said, many mental health problems can look different in autistic people. We need to recognise that and make sure that the issue is addressed, and that people have the appropriate treatments and are dealt with properly.”

“Intervention from Barry Sheerman MP for Huddersfield:

My hon. Friend is quoting from an excellent piece of research, but is she aware that the autism commission I chair has ​conducted a piece of work about the spectrum of obstacles and the difficulty that people with autism face in getting through to the right people in the health service? Those two pieces of research are so powerful.”

“I thank my hon. Friend for that intervention, and I absolutely agree that the two pieces of work go together and can help us to improve services for people with autism spectrum disorders.

As others have said, it is becoming increasingly obvious that some mental health therapies are not right for people with autism and do not work in the same ways that they do for other people, and we need to do more research into those areas.

It can be difficult for autistic people to approach services for support, and we have already heard about the issues with going to a GP surgery. Autistic people and their families are also left fighting the system too often, because information is not shared.

We need to do a number of things. First, as others have said, we need to diagnose autism much earlier so that appropriate interventions may be offered to people with autism and their families. Secondly, we need to record people who have autism on GP records and collect data so that we can identify the issues and develop appropriate services. It is good that, in the Westminster Hall debate in September, the Government committed to gathering data. I hope the Minister can update us on progress on that.

Next, it would be useful to hear from the Minister what progress is being made on developing the autism care pathway proposed in the “Five Year Forward View for Mental Health”, and whether it will address suicide specifically.

There is concern that suicide prevention measures are not well designed for autistic people. I hope that the Minister will look at what needs to be done differently to reach and support autistic people in crisis.

Finally, none of the recent Cross-Government suicide prevention strategies make reference to autism. Given that we now know that the risk of suicide is so high in the autism community, and that there are very different issues to be considered, as we have heard, will the Minister commit to ensuring that the next strategy looks directly at how to help autistic people in crisis?”