MPs today signed an EDM supporting the need for improved access to treatment, support and innovative new medicines for PKU patients.

The six MPs, noted below, hope many more MPs will now follow. The six MPs, including  the MP for Blaydon, Liz Twist, also hope the EDM will raise awareness of PKU, a rare metabolic disease which inhibits the ability to metabolise phenylalanine within protein. There is a concern among MPs that the only treatment currently provided by the NHS is a severely restricted diet which places a great burden on patients or carers.


PKU Early day motion