This afternoon I sent a cross-party letter to BioMarin, calling on them to make Kuvan more affordable so PKU patients in the UK are able to access it. It is about time BioMarin put patients before profits.
This follows the petition handed in to BioMarin’s London HQ last month, signed by more than 16,000 people, which asked that BioMarin make Kuvan affordable to the NHS. With BBC Newsnight recently covering the problems those with PKU face, we believe this issue is starting to get the attention it deserves.
You can read more about the campaign here: